Sunday, October 15, 2006

Quick Status Report - Day 16

Weight: 4 lbs, 4 oz
IV: only sugar water now
Nasal cannula: room air; no apnea since 10/12
Meds: Caffeine, Vancomycin
Labs: Stool still negative for blood; blood sugar = 76
Feeding: 32cc every 3 hours, 2 nursing sessions/day, 1 bottle/day (the rest by gavage); if continuing to tolerate well, up feeds by 5 cc every 4th feed
Bed: Isolette

Nurse Sarah reported that mighty Samsonite tried to launch off the end of his platform in the isolette again. Strong baby!

Today is the baby shower that was supposed to occur 8 weeks before Samson's arrival. Lots of family & special friends in town for the big event. Can't wait to see everyone and celebrate that our baby's here (even if not the way we expected). Thanks, y'all!

Here's a pic from Papaw Walton's first visit last night:
He says those slender fingers are made for guitar pickin'.

Saturday, October 14, 2006

Samson 1, Staph 0

Tuesday, we could see that something was wrong. Samson was very docile, in a deep sleep, and would not rouse for skin-to-skin or our first attempt at latch-on. Unlike every other visit, he did not open his eyes when hearing our voices or cry when returned to the warmer when we needed to leave. The IBCLC said that this is common with preemies, but Dad and Mama were not convinced. Most alarming of all was that as the afternoon wore on, his heart rate shot up near 200 BPM and stayed there, although he was not doing anything but sleeping -- this is not good.

By 5:30p, we received the call from Dr. C that it looked like an opportunistic staph infection common in preemies, entering the blood through one of his numerous IV sites (these get changed every 1-3 days). Samson was put back on the high-flow nasal cannula and constant gavage, and we were told that he might have to go back on to the CPAP if his breathing didn't improve soon. Several types of antibiotics were started and feeding was suspended again (the first time was during the treatment for the PDA the previous week). There were lots of diagnostics: blood cultures, stool for blood, x-rays looking at GI tract, spinal tap (agh!) and more, chasing the source/type of infection. We were terrified (again), back to "your wife could die and you need a c-section right now" anxiety levels.

True to his name, Samson came back swinging. Within 12 hours of receiving the meds, Samson was showing improvement, back to his grumpy self, screaming and kicking when anything wasn't to his liking. Oh, thank heavens! We were cautious with our optimism, not wanting to get our hopes up too high, but each report after that was more positive than the next.

By Thursday, he was back on gavage feeds and ready to try that nursing thing again. Successful latch-on was achieved (way to go, little boob-man!) and we started a daily breastfeeding appointment to fit in with his other gavage feeds and single bottle feed.

Dad finally got to hold (yay!) and offer the first bottle on Thursday night. The boy wasn't too interested in that hard nipple after his awesome experience with the breast, so we're gonna try to convince the doctor that his 2 "by mouth" feeds per day be nursing. That will probably be a challenge, as the clinicians like being able to easily measure how much he's consumed and the breast doesn't have those handy mL markings like the preemie bottles do.

Now we are getting back to "feeder-grower" status, and looking forward to once again starting to remove the wires and tubes one-by-one. Friday afternoon, they moved Samson out of his open warmer to a cozy, quiet isolette, and we expect that the nasal cannula will come off soon. He is regulating his body temp well and will probably get into an open bassinet (and get to wear his own clothes) by the end of the weekend.

Of course, after this latest round of panic, we'd rather see him progress slowly & steadily and keep all of his supports until he really doesn't need them any more.

Okay, so after that harrowing tale, now how about some fun pictures?

This is meconium (new baby's poop, which looks really weird, blackish-green and slimy), deposited during Daddy's holding session last night. Hope this becomes a habit with the boy. "Daddy's holding me, so it must be time to poop." Excellent.

And these are some of the many faces of The Boy, Sammy-pie, Sam-so-nite:









Thursday, October 12, 2006

Kangaroo Care After 2nd Big Scare


Day 12 (Wednesday). Samson now weighs 4 lbs, 2.6 oz (yay!). First projectile poop today, per Nurse Vickie (we love her!). You can watch a short video of us here. As you can see, the nasal cannula and constant gavage tube are back (we knew this might happen, as babies often go off & back on the treatment for a few times before they are strong enough to breathe totally independently) and the IV has moved back to the scalp for a 2nd time (this looks much scarier than it really is; the scalp is actually the best place for a NICU baby's IV). At least it's not squarely in the forehead like a unicorn (this, too, may be in our future). Next post will fill-in our roller coaster ride from the past 2 tough days/nights. The news from the NICU can't always be rosy...

Wednesday, October 11, 2006

Tuesday, October 10, 2006

A Really Good Day

After too many days of worry, we finally had a thoroughly enjoyable "normal" parenting experience in the NICU Sunday night: the first bath. Nurse Ellen (herself the mother of a premie delivered at St. David's; he's the boy gymnast hovering over the "horse" in the portraits that line the hallway leading to the NICU entrance) instructed us in the art of the sponge bath while Samson squirmed on the Chux pad in the warmer. Dad held the head and limbs; Mama scrubbed the boy clean.

Though he fussed a bit after the shampoo and diaper-area wash, Samson was actually quite accommodating. After we'd heard all week that he just didn't like lying on his back, he stayed in that position for a good 2 hours with a completely content demeanor. Has our Surly Samson morphed into Serene Sammy? You be the judge:

After the bath, Mama diapered and Dad read Dr. Seuss' "The Foot Book" while Ellen poured the milk. Happy baby!

When the 10pm shift change signaled it was time to go, we breathed a big sigh of satisfaction knowing that we were leaving our boy in bliss.

Monday morning, the news was even better. Dr. D said that it was time to try removing the nasal cannula to see how Samson will do without respiratory assistance, and the gavage tube can go as well, since air will no longer be forced down his throat. No more tape on the face! Yay!